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Children with Disabilities and Impacts on Families

Abstract

Children with disabilities and their families face substantial health and social challenges. Health service inequities exist in multiple arenas for children with disabilities that can profoundly influence health, function and well-being. The impacts of disability in childhood also extend to their families who may experience psychological and physical stress, social restrictions and financial burdens. Using social ecological modeling to contextualize children with disabilities, the experience of children and their families can be studied in multiple settings. Using the behavioral model of health services use, health inequities for children with disabilities can be elucidated. The 3 papers included in this dissertation utilize these frameworks to profile the health and health services of children with disabilities, to evaluate the family impacts of childhood mental health problems and to rate the impacts of proton radiation therapy on the families of children with brain tumors.

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